A little about Grayson

So, I wrote about having Grayson at Forsyth, here is a little bit more about what happened soon after we came home. I have this recorded in a notebook already so won't put most of the medical detail here, there is just so much. On Wed Feb 21, Grayson had his first baby post birth check up. Something was not right. I was not sure what. The MD he saw was in a hurry it seemed to me and thought he was fine. HE WASN'T. The MD thought he had what she classified as reflux. Through the night Wed he was not well. Thursday Feb 22nd we returned to the MD as I knew something was wrong, jsut not sure what. Some symptoms he was having were not normal. The MD agreed to see him again Thurs. A different MD than Wed. Our dear and close friends Marilyn and Tom came to the house and went with me to the MD. Jarrett went on to work, not having any idea at the time that baby was so sick. When we arrived at MD office, Grayson was checked over, MD not sure what was wrong, she left the room for a moment, right at that time Grayson had a symptom that we thought she needed to see, called down the call to her she came running back, took Grayson into her arms and told us that this was not good, that Grayson was having seizures. She told us that this is serious and yelled out for her staff to call 911. Her instructions were to take him to Brenners NOW!!! Well, I called Jarrett, he actually had already been on his way back to meet us for the appt which was at 9:00 so he was coming through the door. The ambulance arrive immediately. There was some confusion. The drivers said they must tak eGrayson to the hops right across the street. Our MD said no Brenners, they said the supervisor was at lunch of something crazy so our MD jumped into her van and drove right across the street to the hospital to meet us. She ran right into the ER and told everyone in there that "These parents are allowed back here and will be back here the whole time!" And so we were. We let them work with Grayson to stabilize him. It was awful We were in shock. Mand T called our Church right away. We had 2 of our pastors come out to be with us. Jarrett and I were not saying a work, just IN SHOCK. We then got up to go to Brenners. No one knew WHY he was having seizures, just needed to keep him stabilized. They immediately started running tests to check for several illnesses that I have listed in another place. They had to do a spinal tap, we were so devastated that they wanted to do that ho our newborn, but they had to hurry and find the cause of the seizures and to be sure there was no infection. It was later and later, and more of our family came into Brenners to be with us. We did not learn the fact that Grayson had a stroke until he had a series of CAT scans done the next day. Then were were told that he had a Grade IV Intraventricular Hemorrhage, this is the worst stage. Grayson was poked and prodded and stuck so many times with needles, but we asked and asked about every single thing to be sure it was medically necessary and what result they were looking fo ror what they could learn from each test. So much was going on. His head was swelling due to the brain bleed. He was put on anti seizure meds immediately and also net eating. He then was so weak that he was giving up, failure to thrive. The nurses were the best ever in the NICU. They taught us how to force him to eat. They had to g tube him at one point just to be sure to get some nutrition into him. So he was there for 9 days. Our church family and clsoe friends carried us through this. Jarrett and I cried and cried because of the unknown. We had food and prayers and help with poor little Gage for those 9 days. Gage's birthday was the same weekend as Grayson came home, and we were determied that he would have the nice party that he deserved. SO, Grayson is well. He will be 2 in a few days. I cannot believe all he has been through!! So many more tests, evaluations, and this will be for some time now. He di dhave surgery on March 22nd 2007 for shunt placement at 5 weeks of age. This will be inside of him for life. The sunt could fail at any time. 60% of shunts fail by age 2 yrs. Grayson is blessed.

He has an awesome big brother that will watch over him forever!!! A momma and dada that love him to pieces!!! and most importantly, God will always keep him very close!!!!!
I did skip a lot, but it is so overwhelming even after 2 yrs have passed. I will put more later.